UDS FTLD System Abstract

 
   Lead Investigator:    Duane Beekly
   Institution      :    NACC - University of Washington
   E-Mail           :    beekly@uw.edu
   Proposal ID      :    218


   Publications:


1  Beekly D, Monsell S, Besser L, Gill D, Robichaud E , Knopman D,  Kukull W
   The NACC FTLD Module data
   2012   Abstract  Dement Geriatr Cogn Disord   34 (Suppl 1)   , 

   PUBLISHED





   Proposal Description:
   NACC developed a relational database and data submission system for the FTLD module, using Oracle and SAS software. NACC has further developed electronic forms, web data entry, and data element dictionaries and extensive error checking capabilities as part of the web-based data submission system. Data submitted by ADCs are subject to several levels of error checking and verification before being included in the ???current??? database. Data are archived quarterly for use in research.  Quality assurance reports are sent to each ADC monthly. Data transmitted to researchers are encrypted (at least 128-bit encryption suite).